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    Last Updated: 01/09/2026

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    MediFind found 14 doctor with experience in Porencephaly near Saint Louis, MO. Of these, 12 are Experienced and 2 are Advanced.

    Location
    LocationClose
    14 providers found
      Advanced in Porencephaly
      Neurology | Pediatrics
      Advanced in Porencephaly
      Neurology | Pediatrics
      1 Childrens Pl # 3S34, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Wright-Jin is a Neurologist and a Pediatrics provider in Saint Louis, Missouri. Dr. Wright-Jin is rated as an Advanced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Corpus Callosum Agenesis, Aicardi Syndrome, Acrocallosal Syndrome, and Bone Dysplasia Corpus Callosum Agenesis. Dr. Wright-Jin is currently accepting new patients.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      Ssm Health Care Group

      1465 S Grand Blvd, 
      Saint Louis, MO 
       (2.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Joanna Kemp is a Neurosurgery provider in Saint Louis, Missouri. Dr. Kemp is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Subdural Hematoma, Hydrocephalus, Chronic Subdural Hematoma, Gastrostomy, and Awake Craniotomy. Dr. Kemp is currently accepting new patients.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Ssm Health Care Group

      1201 S Grand Blvd, 
      Saint Louis, MO 
       (2.3 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Philippe Mercier is a Neurosurgery provider in Saint Louis, Missouri. Dr. Mercier is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Pica, Subdural Hematoma, Hydrocephalus, Microvascular Decompression, and Awake Craniotomy.

      Learn about our expert tiers
      Experienced in Porencephaly
      Experienced in Porencephaly

      Ssm Health Care Group

      1201 S Grand Blvd, 
      Saint Louis, MO 
       (2.3 miles away)
      Languages Spoken:
      English, Dutch, French
      Accepting New Patients
      Offers Telehealth

      Jeroen Coppens is a Neurosurgery provider in Saint Louis, Missouri. Dr. Coppens is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Meningioma, Posterior Fossa Tumor, Pituitary Tumor, Gastrostomy, and Awake Craniotomy. Dr. Coppens is currently accepting new patients.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery
      4921 Parkview Pl, Dept Neurological Surgery, Ste 6b/6c, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Ralph Dacey is a Neurosurgery provider in Saint Louis, Missouri. Dr. Dacey is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Brain Aneurysm, Meningioma, Pituitary Tumor, Posterior Fossa Decompression, and Endovascular Embolization. Dr. Dacey is currently accepting new patients.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery
      4921 Parkview Pl, Div Neurological Surgery, Ste 6b/6c, 
      Saint Louis, MO 
       (3.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Keith Rich is a Neurosurgery provider in Saint Louis, Missouri. Dr. Rich is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Brain Tumor, Meningioma, Glioma, Endovascular Embolization, and Gamma Knife Radiosurgery. Dr. Rich is currently accepting new patients.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Washington University

      510 S Kingshighway Blvd, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Steven Welch is a Radiologist in Saint Louis, Missouri. Dr. Welch is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Porencephaly, Schizencephaly, Familial Short Stature (FSS), and Idiopathic Short Stature (ISS). Dr. Welch is currently accepting new patients.

      Experienced in Porencephaly
      Neuroradiology | Radiology
      Experienced in Porencephaly
      Neuroradiology | Radiology

      Washington University

      510 S Kingshighway Blvd, 
      Saint Louis, MO 
       (3.7 miles away)
      Languages Spoken:
      English

      Mitra Boodram is a Neuroradiologist and a Radiologist in Saint Louis, Missouri. Dr. Boodram is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Stroke, Familial Multiple Lipomatosis, Pelvic Lipomatosis, and Gallbladder Disease.

      Experienced in Porencephaly
      Experienced in Porencephaly

      Physician Groups Lc

      1110 Highlands Plaza Dr E, Suite 280, 
      Saint Louis, MO 
       (4.5 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients

      Cheryl Faber is a Neurologist in Saint Louis, Missouri. Dr. Faber is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Spastic Paraplegia Type 11, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, Troyer Syndrome, and Spastic Paraplegia Type 2. Dr. Faber is currently accepting new patients.

      Experienced in Porencephaly
      Neurosurgery
      Experienced in Porencephaly
      Neurosurgery

      Urology Of St. Louis

      Neurosurgery Of St. Louis, 12855 North 40 Drive Suite 125 North Tower, 
      Saint Louis, MO 
       (14.2 miles away)
      Languages Spoken:
      English

      Sarah Travers is a Neurosurgery provider in Saint Louis, Missouri. Dr. Travers is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Metastatic Brain Tumor, Brain Herniation, Chiari Malformation Type 1, and Chiari Malformation.

      Advanced in Porencephaly
      Advanced in Porencephaly

      Mercy Clinic Surgical Specialists LLC

      621 S New Ballas Rd, Suite 3005b, 
      Saint Louis, MO 
       (13.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Justin Sweeney is a Neurosurgery provider in Saint Louis, Missouri. Dr. Sweeney is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Posterior Fossa Tumor, Primitive Neuroectodermal Tumor (PNET), Delirium, Laminectomy, and Gamma Knife Radiosurgery. Dr. Sweeney is currently accepting new patients.

      Experienced in Porencephaly
      Family Medicine
      Experienced in Porencephaly
      Family Medicine

      Mercy Clinic East Communities

      621 S New Ballas Rd, Suite 189a, 
      Saint Louis, MO 
       (13.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kevin King is a primary care provider, practicing in Family Medicine in Saint Louis, Missouri. Dr. King is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are High Cholesterol, Type 2 Diabetes (T2D), Sitosterolemia, and Hypertension. Dr. King is currently accepting new patients.

      Experienced in Porencephaly
      Internal Medicine
      Experienced in Porencephaly
      Internal Medicine

      St Louis Medical Clinic, P.C.

      3009 N Ballas Rd, Suite 100b, 
      Saint Louis, MO 
       (13.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Phillip Brick is a primary care provider, practicing in Internal Medicine in Saint Louis, Missouri. Dr. Brick is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Pleurisy, and Endoscopy. Dr. Brick is currently accepting new patients.

      Experienced in Porencephaly
      Neurology
      Experienced in Porencephaly
      Neurology

      Professional Physicians Pain Services LLC

      10012 Kennerly Rd Ste 404, 
      Saint Louis, MO 
       (13.8 miles away)
      Languages Spoken:
      English

      Venkat Rao is a Neurologist in Saint Louis, Missouri. Dr. Rao is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Seizures, Memory Loss, Transient Ischemic Attack (TIA), and Stroke.

      Showing 1-14 of 14

      Last Updated: 01/09/2026

      What is the definition of Porencephaly?

      Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

      When should I see a Porencephaly doctor near Saint Louis, MO?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Porencephaly doctor near Saint Louis, MO?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Porencephaly doctors near Saint Louis, MO?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Porencephaly doctors near Saint Louis, MO?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Porencephaly doctor near Saint Louis, MO?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

      Why is it important to get a second opinion from a different Porencephaly doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Porencephaly doctor near Saint Louis, MO?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Porencephaly doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Porencephaly doctors near Saint Louis, MO?

      Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Porencephaly doctor that offers video calls?

      Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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